Packard Center researcher and Rothstein lab member chosen as a 2023 ALS Association Milton Safenowitz Postdoctoral Fellow
Congratulations to S. Can Akerman, Ph.D, a member of the Rothstein Lab, a member of the Packard Center…
ALS Headlines
Delta Tau Delta fraternity shoots hoops for ALS Research.
The brothers of Delta Tau Delta fraternity at Butler University in Indianapolis, Indiana recently held a 3v3 basketball…
Researchers publish national guidelines for ALS genetic testing, counseling
Researchers at The Ohio State University Wexner Medical Center and College of Medicine led the creation of evidence-based…
His Mind Helped Rebuild New York. His Body Is Failing Him.
Reposted from the NYTimes.comBy Christopher MaagPublished Sept. 6, 2023 Dan Doctoroff once had more power to decide what got built…
FDA grants accelerated approval of tofersen for treatment of SOD1-ALS
The Food and Drug Administration granted accelerated approval of the drug tofersen for the treatment of SOD1-ALS. Developed by…
Answer ALS is proud to announce the public release of new in-depth biological and clinical datasets to aid ALS research
A new set of Answer ALS project data is now available through the Answer ALS Data Portal. A…
New links between toxic protein and ALS discovered
Neuroscientists at Thomas Jefferson University have identified a new way that repeat expansion in the C9orf72 gene—the most…
New Phase 2 trial results show promise for ALS
Results of a new Phase 2 randomized clinical trial in 137 patients with ALS showed that treatment with…
Key link uncovered between C9orf72 mutation and TDP-43 pathology in ALS/FTD
In a new study, a team of Packard scientists identified a key intersection between two major pathways of…
Legacy of Terror and Hope
For people with inherited forms of ALS, learning of their genetic predisposition can feel like a “death sentence.”…