Help those with ALS this Giving Tuesday
Gifts made between Giving Tuesday and December 31 will be matched up to $100,000. On this national day…
ALS Headlines
Fighting the good fight against ALS
ALS Advocate Brian Wallach recently appeared on CBS Sunday Morning to discuss his battle against ALS. Brian Wallach…
Dr. Jeff Rothstein discusses advances in ALS Research on PBS News Hour.
Packard Center founder and director, Dr. Jeffrey Rothstein, recently appeared with Judy Woodruff on the PBS News Hour…
Packard Center and the Live Like Lou Foundation announce joint grant to study cellular and animal models of SPTLC1-related juvenile ALS.
The Robert Packard Center for ALS Research at John Hopkins and the Live Like Lou Foundation have announced…
Packard Center announces new grant award to Luc DuPuis, PhD.
The Packard Center has recently awarded a new grant to Luc DuPuis, PhD, Research Director at INSERM in…
Packard Center researcher and Rothstein lab member chosen as a 2023 ALS Association Milton Safenowitz Postdoctoral Fellow
Congratulations to S. Can Akerman, Ph.D, a member of the Rothstein Lab, a member of the Packard Center…
Delta Tau Delta fraternity shoots hoops for ALS Research.
The brothers of Delta Tau Delta fraternity at Butler University in Indianapolis, Indiana recently held a 3v3 basketball…
Researchers publish national guidelines for ALS genetic testing, counseling
Researchers at The Ohio State University Wexner Medical Center and College of Medicine led the creation of evidence-based…
His Mind Helped Rebuild New York. His Body Is Failing Him.
Reposted from the NYTimes.comBy Christopher MaagPublished Sept. 6, 2023 Dan Doctoroff once had more power to decide what got built…
FDA grants accelerated approval of tofersen for treatment of SOD1-ALS
The Food and Drug Administration granted accelerated approval of the drug tofersen for the treatment of SOD1-ALS. Developed by…