Robert Packard Center for ALS Research and Active Against ALS Joint Research Funding Partnership
The Robert Packard Center for ALS Research at Johns Hopkins and Active Against ALS are pleased to announce…
Packard Center News
Coast 2 Coast 4 ALS: A Ride with Purpose
Every mile tells a story in the Coast 2 Coast 4 ALS (C2C4ALS) journey, a cross-country cycling adventure…
Robert Packard Center for ALS Research and ALS Society of Canada Announce Joint Research Funding Partnership
The ALS Society of Canada and the Robert Packard Center for ALS Research at Johns Hopkins are pleased…
Make an Even Greater Impact with the Johns Hopkins Legacy Match
As Johns Hopkins celebrates its 150th anniversary, there’s a special opportunity to amplify your future gift. When you…
Team Brian Swings for a Cure at Topgolf
On May 31, Team Brian brought energy, generosity, and plenty of friendly competition to Topgolf in Gaithersburg, Maryland,…
Packard Center Named Charity Partner for the 2026 TCS New York City Marathon
The Packard Center is honored to have been selected as an official Charity Partner for the 2026 TCS…
Packard Center celebrates the 20 international teams awarded £2 million in the Longitude Prize on ALS
The twenty Discovery Award winners of the Longitude Prize on ALS were recently announced. The Longitude Prize on…
When Promising ALS Treatments Fall Short
Failure in science isn’t the end — it’s data. In a new Nature spotlight, Packard Center Founder and Executive Director,…
In a Milestone for A.L.S., a Treatment Helps Some Patients Improve
From the New York Times, May 6, 2026 The development of tofersen stemmed largely from the early fundamental research by…
Suzie Connelly Named New Director of the Robert Packard Center
The Packard Center announced the appointment of Suzie Connelly as the new Director of Administration and Operations of…