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Online ALS Resources

The Packard Center strives to provide ALS support through global scientific research, encouraging collaboration across the research field, and connecting people living with ALS to resources detailing the latest ALS clinical trial and treatment options. Through ALS education, a dedication to science, and an active fundraising program, the Packard Center is committed to providing the ALS community with a source of – and a resource for – hope.

The goal of the Packard Center is to help people live with ALS for as long and as well as possible, and to provide those affected by ALS with ways to get involved in the fight against it.

There are many resources available for people living with ALS. Below is a collection of organizations that can assist with support services for people living with ALS and provide tools related to ALS and ALS research:

  • The ALS Association
  • ALS FORUMS – A Support Community for Individuals Affected by ALS/MND
  • ALS Hope Foundation
  • ALS Untangled
  • The ALS Society of Canada
  • ALS Ride for Life
  • Ann Arbor Active Against ALS
  • Aviators Against ALS
  • The Brigance Brigade
  • Compassionate Care ALS
  • Everything ALS
  • Every 90 Minutes – Inspiring the Fight Against ALS
  • Hope Loves Company
  • I Am ALS
  • International Alliance of ALS/MND Associations
  • Les Turner ALS Foundation
  • Live Like Lou Foundation
  • Muscular Dystrophy Association
  • National Amyotrophic Lateral Sclerosis (ALS) Registry
  • National Library of Medicine
  • Patients Like Me
  • Project ALS
  • Team Gleason
  • Your ALS Guide

ALS Research and Trials

For information on clinical research and trials related to ALS, please visit the following resources:

  • NEALS Consortium
  • Muscular Dystrophy Association
  • I AM ALS
  • CReATe Consortium
  • The ALS Association
  • ClinicalTrials.gov (National Library of Medicine)
  • Clinical Trials Unit at Johns Hopkins

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