Packard Center investigator, Dr. Alyssa Coyne, received 15th Annual Paulo Gontijo Award from the Instituto Paulo Gontijo. The prize is awarded to promising young ALS researcher. It was presented to Dr. Coyne at the opening of the 34th International Symposium on ALS/MND in Basel, Switerland. Dr. Coyne is an Assistant Professor in the Department of […]

Tim Green, Atlanta Falcons Legend, and Steve Gleason, New Orleans Saints Legend, have something in common well beyond football and have leveraged their platforms for a cause greater than life on the field. Watch their story: https://www.youtube.com/watch?v=gzwS4LN6f5s

Gifts made between Giving Tuesday and December 31 will be matched up to $100,000. On this national day of giving, you can support ALS research and accelerate breakthroughs by making your gift today. Your generosity will enrich groundbreaking research and impact the speed at which discoveries can be made by our Packard Center – funded […]

ALS Advocate Brian Wallach recently appeared on CBS Sunday Morning to discuss his battle against ALS. Brian Wallach has beaten the odds after being diagnosed with ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Given six months to live, remarkably he has survived six years. During that time, he and his wife Sandra have lobbied […]

Packard Center founder and director, Dr. Jeffrey Rothstein, was a panelist at the recent Milken Institute Future of Health Summit in Washington, DC. He appeared on the panel entitled: Future Pathways to Enable Open Science and Increase Research Transparency and Collaboration where he spoke with experts from the Aspen Institute, Good Science Project, The Latino […]

Packard Center founder and director, Dr. Jeffrey Rothstein, recently appeared with Judy Woodruff on the PBS News Hour discussing advances in ALS Research. The piece aired on Wednesday, November 1, 2023. Watch here: https://www.pbs.org/newshour/show/former-nyc-deputy-mayor-raises-millions-for-als-research-while-facing-his-own-mortality

The Robert Packard Center for ALS Research at John Hopkins and the Live Like Lou Foundation have announced plans to jointly fund a one-year research grant for Payam Mohassel, MD, PhD (Johns Hopkins) to study cellular and animal models of SPTLC1-related juvenile ALS. Recent work in his lab led to the discovery of a new […]

The Packard Center has recently awarded a new grant to Luc DuPuis, PhD, Research Director at INSERM in Strasbourg, France This new grant will allow researchers to understand the importance of NUP50 decrease in motor neurons to define the role of this protein in the disease.

Congratulations to S. Can Akerman, Ph.D, a member of the Rothstein Lab, a member of the Packard Center community of researchers and a postdoctoral fellow at Johns Hopkins University for being selected selected to join The ALS Association’s 2023 Class of Milton Safenowitz Postdoctoral Fellows. Five bright, young researchers from prestigious academic institutions across the country […]

The brothers of Delta Tau Delta fraternity at Butler University in Indianapolis, Indiana recently held a 3v3 basketball tournament called Delt Dunk in support of the Packard Center. This year, the fraternity brothers, families, friends, as well as members of Beta Zeta alumni of Delta Tau Delta, and the entire Butler University community raised almost […]