Skip to content
No results
Packard Logo 25 Years
  • About ALS
    • Understanding ALS
    • Symptoms/Diagnosis of ALS
    • Treatment of ALS
    • Clinical Care for ALS
    • Resources for People Living With ALS
  • Research
    • Understanding ALS
    • Research Projects
    • Recruiting Researchers
    • Resources for Scientists
  • Our Organization
    • Our Story
    • Packard Center Team
    • Scientific Advisory Board
    • Board of Governors
  • News
Make a Gift

  • Contact Us
Make a Gift
Packard Logo 25 Years
  • About ALS
      • Understanding ALS
      • Symptoms/Diagnosis of ALS
      • Treatment of ALS
      • Clinical Care for ALS
      • Resources for People Living with ALS
    • About ALS
      • The Packard Center consists of a group of committed scientists who tackle key questions related to the cause and treatment of ALS. To support their studies, the Center provides expertise, advanced technology, and a highly collaborative spirit.

        Learn More
  • Research
      • Our Approach
      • Understanding ALS
      • Packard Center ALS Strategy
      • Research Projects
      • Partnerships
      • Resources for Scientists
      • The Packard Center ALS Research Strategy is a tried and true approach to accelerate discovery and moving basic/fundamental research towards the clinic.

        Learn More
  • Our Organization
      • About Us
        • Our Story
      • How Funding Works
      • Our Team
        • Packard Center Team
        • Scientific Advisory Board
        • Board of Governors
      • Packard Center Operations
    • Support the Packard Center
      • Through our collaborative ALS research, the Packard Center seeks to unlock ALS. Your generosity helps bring us closer to a cure.

        Make a Gift
      • packark funding event mega menu
  • News
Home » News

  • Contact Us
Make a Gift
Packard Logo 25 Years

NEWS


Packard Center's 25th Annual ALS Research Symposium Unites Brightest Minds in ALS Research
May 12, 2025
This three-day event served as a key forum for sharing cutting-edge research and fostering collaboration. The Robert Packard Center for ALS Research recently held its milestone 25th Annual ALS Research Symposium in Baltimore, bringing together nearly 450 researchers, including 150 virtual participants. This prestigious three-day event served as a key forum for sharing cutting-edge research […]
Read More >>
Vande Velde Awarded Prestigious King Charles III Coronation Medal for outstanding contributions to ALS
May 12, 2025
Packard Center Scientific Director Christine Vande Velde, PhD, was recently recognized as one of 39 individuals from the Canadian ALS community to receive the prestigious King Charles III Coronation Medal for their outstanding contributions toward a world free of ALS. Dr. Christine Vande Velde, (fourth from left) Packard Center Scientific Director, receives her King Charles […]
Read More >>
Packard Center Celebrates 25 Years of Innovation in ALS Research
May 12, 2025
The commemoration served as the perfect prelude to the Center’s 25th Annual ALS Research Symposium. The Robert Packard Center for ALS Research marked a significant milestone with its 25th anniversary celebration, bringing together a distinguished group of donors, researchers, Board of Governors members, Johns Hopkins leadership, longtime supporters, and both current and past Center staff. […]
Read More >>
Packard Center Supports Collaborative C9orf72 FTD/ALS Summit
May 12, 2025
The Robert Packard Center for ALS Research proudly supported the 2nd Bi-annual C9orf72 FTD/ALS Summit, a landmark gathering that brought together leading clinicians, researchers, and families affected by the C9orf72 mutation. This collaborative event, held in April in Phoenix, Arizona, focused on advancing our understanding of C9-related disease biology, accelerating biomarker development, and enhancing therapeutic […]
Read More >>
Packard Center Supports Game Changer Gala
May 11, 2025
The Game Changer Gala, held in February 2025 in New Orleans, brought together 800 distinguished guests, including members of the ALS community, NFL greats in town for Super Bowl LIX, acclaimed actors, and renowned musicians, for an evening of celebration and fundraising. Comedian Keegan-Michael Key served as master of ceremonies, and Steve Gleason delivered a […]
Read More >>
Packard Center’s Board of Governors Guides 25 Years of Hope
April 16, 2025
Reprinted with permission: giving.jhu.eduApril 15, 2025, By Erin Torres This year, the Robert Packard Center for ALS Research at Johns Hopkins celebrates 25 years of work. The Packard Center is a place like no other, operating through a unique model that transcends institutional borders to share knowledge and fuel progress around the globe. And this model is […]
Read More >>
Packard Center mourns loss of acclaimed sportswriter and ALS advocate John Feinstein
March 13, 2025
The Packard Center mourns the loss of John Feinstein, the acclaimed sports commentator and author whose influence extended far beyond his celebrated 47-year career at The Washington Post and his 48 bestselling books. Feinstein formed a special bond with the Packard Center through his advocacy for ALS research. His powerful book, “Caddy for Life,” which […]
Read More >>
Hop On A Cure Awards Grant to Fund Four Research Projects
December 19, 2024
The Packard Center recently received a transformative $300,000 grant from Hop On A Cure, supporting four future critical research initiatives in the fight against ALS. This generous contribution reflects the organization’s dedicated mission to support research to prevent, reverse, and cure ALS while raising awareness, building a compassionate community, and unleashing the healing power of […]
Read More >>
Packard Center Investigators use CRISPR based knockdown to identify novel factors that modulate the subcellular distribution of CHMP7
December 19, 2024
In a new paper published in Neuron, Gene Yeo, PhD (University of California, San Diego), in collaboration with Packard Center founder, Dr. Jeffrey Rothstein and Packard Center investigator Dr. Alyssa Coyne used CRISPR based knockdown to identify novel factors that modulate the subcellular distribution of CHMP7. In doing so, they identified specific splicing complex proteins that […]
Read More >>
Important Holiday and Year-End Information
December 17, 2024
The Packard Center development office will be closed for the winter holidays from December 24, 2024, through January 1, 2025.  Click here to learn more about the Packard Center’s holiday hours and ways you can make a year-end gift. Holiday Hours The Packard Center development office will be closed for the winter holidays from December […]
Read More >>

Sign up for Packard Center News

Join the Pack

Answer ALS

Pedersen Brain Science Institute

ALS Clinics at Johns Hopkins

Logo footer
John Hopkins Logo

Copyright © 2025 Packard Center
Site by Cornershop Creative   Cornershop Creative logo

  • The John G. Rangos Building
    855 N. Wolfe Street, Suite 270, Baltimore, MD 21205
  • Contact Us
  • Privacy Policy