The Robert Packard Center for ALS Research recently hosted its first ALS Clinical Research Learning Institute® (CRLI) at Johns Hopkins, welcoming 22 people with lived ALS experience to Baltimore. Organized by the Northeast ALS Consortium (NEALS), the ALS CRLI program provides comprehensive education on ALS clinical research, covering topics such as study design, data analysis, […]

Did you know that only 32% of Americans have a will and 14% of U.S. adults give a lack of assets as their reasoning for a lack of estate planning?* Estate planning is for everyone – not just the rich. Every gift makes a difference and it provides a vehicle for taking care of loved […]

Jeffrey D. Rothstein, MD, PhD, Packard Center Founder and Executive Director, has been elected to the National Academy of Medicine (NAM), an independent organization of leading professionals from multiple scientific fields including health, medicine and the natural, social and behavioral sciences. NAM serves alongside the National Academy of Sciences and National Academy of Engineering to […]

The ALS Clinical Research Learning Institute® is a two-day program that empowers attendees to be strong advocates in the filed of ALS by educating them on clinical research and the therapy development process. Certification as an ALS Research Ambassador® provides opportunities to influence and improve the ALS Research process. Organized by the Robert Packard Center […]

To kick off the I AM ALS Community Summit, the Packard Center recently participated in Making the Impossible Dream Possible: An Evening of Music and Conversation at the offices of Forbes Tate Partners in Washington, DC. The event, co-hosted by I AM ALS and Hop on a Cure, featured remarks from I AM ALS founder Brian Wallach and his wife Sandra Abreva, […]

The Packard Center was pleased to support Ignite: The Spark When Science, Creativity, and Technology Converge. The event, hosted by Answer ALS, was held at Union Station in Washington, DC, and explored how emerging technologies are supporting disease discovery. Guests heard from remarkable speakers, including Steve Gleason, who read an excerpt from his new book “A Life Impossible.”  In addition, Packard Center […]

The Packard Center is pleased to announce the appointment of Jayme Frieder to its Board of Governors. Frieder is a senior sales executive at Salesforce, responsible for managing relationships with some of the company’s biggest customers. With a three-decade career that spans advertising and software sales, Frieder has applied her core values of trust and compassion to […]

This year, a record number of participants joined us for the 24th annual Packard Center Symposium. Nearly 300 were on-site in Baltimore, while an additional 100 participated online. The gathering allowed Packard grantees, affiliates, and other ALS researchers to share their latest results in an open fashion to fuel new avenues of investigation and foster novel […]

Funding for this study was provided by the Packard Center. Two progressively degenerative diseases, amyotrophic lateral sclerosis (ALS, commonly known as Lou Gehrig’s disease) and frontotemporal dementia (FTD, recently in the news with the diagnoses of actor Bruce Willis and talk show host Wendy Williams), are linked by more than the fact that they both […]

In February 2024, Hop On A Cure awarded $100,000 to the Packard Center to help further its research mission. Hop On A Cure’s mission is to support research to prevent, reverse, and cure ALS while raising awareness, building a compassionate community, and unleashing the healing power of hope.  John Driskell Hopkins, also known as “Hop”, is a […]